Upcoming Events
February 24-25, 2025
Advocacy Day
Washington, D.C.
Go to our Events Page
for more information
Past Events
December 7,2024
FXAM Holiday Party
November 2, 2024
FXAM Moms:
Let's Do Lunch!
August 24, 2024
FXAM Family Picnic
July 22, 2024
Awareness Day
July 25-28, 2024
19th International
Fragile X Conference
July 22, 2024
World Fragile X
Awareness Day
May 24, 2024
Fragile X Awareness
at Comerica Park
February 26-27, 2024
Advocacy Day
December 2, 2023
FXAM Holiday Party
September 23, 2023
Father and Son
Picnic and Playday
August 26, 2023
FXAM Family Picnic
July 22, 2023
World Fragile X Awareness Day at Comerica Park
May 6, 2023
FXAM Moms:
Let's Do Lunch!
April 22, 2023
Spring Clean Up
February 27-28, 2023
Advocacy Day
October 22, 2022
FXAM Father and Son Picnic/Play Day
August 13, 2022
FXAM Family Picnic
July 22, 2022
World Fragile X
Awareness Day
July 16, 2022
FXAM Moms:
Let's Do Lunch!
July 14-17, 2022
18th International
Fragile X Conference
San Diego, California
Our next support meeting is Saturday, February 1, 2025.
Go to our Support Page for more information.
Fragile X syndrome (FXS) is a genetic condition that causes varying degrees of mental impairment ranging from mild learning disabilities to mental retardation (cognitive impairment). FXS is the most common inherited form of cognitive impairment known and a leading known cause of autism. FXS is caused by one gene that interferes with the formation of a special protein normally found in the brain. As many as one in 151 women and one in 468 men are carriers of this gene, and it affects one in 3,600 to 4,000 boys and one in 4,000 to 6,000 girls.
Some characteristics (not all are always present) of Fragile X Syndrome are:
- Mild learning problems to severe cognitive impairment
- Behavior issues such as ADHD and ADD
- Autistic-like features such as poor social skills, poor eye contact, hand-biting and hand-flapping
- Shyness and social anxiety
- Prominent ears, prominent forehead and long narrow face
- Sensitivity to sounds or lights
- Difficulty adjusting to change
Some older adults with premutations (carriers) may develop a neurological condition called Fragile X-associated tremor/ataxia syndrome (FXTAS). Often misdiagnosed as a "Parkinson's-like" condition, individuals may also have symptoms of ataxia, neuropathy and dementia. Fragile X-associated primary ovarian insufficiency (FXPOI), commonly causes early menopause, is a condition that affects 20-25% of the female FXS carrier population. Learn more on our Resources page.
The Fragile X Association of Michigan (FXAM)
unites the Fragile X community to:
- Enrich lives through educational and emotional support.
- Promote public and professional awareness.
- Advance research toward improved treatments and a cure for Fragile X and it's associated disorders.
Who we are, check out our video HERE.
The Best Club You Never Wanted to Join
The History of the Fragile X Association of Michigan (FXAM).
The Fragile X Clinic at the University of Michigan
uofmhealth.org/conditions-treatments/ped-genetics
Genetic Counselor Jessica O'Shea is joining the UM Fragile X Clinic to serve as the Fragile X Clinic Coordinator. Appointments for evaluation for Fragile X Syndrome in the UM Fragile X Clinic will be available starting Summer of 2024.
Appointments can be scheduled in the UM Fragile X Clinic by requesting a referral from your child’s primary care physician or another specialist who follows them.
More information is available by calling 734-764-0579.
Ask to speak with Jessica for more information about the clinic.
For appointments for those affected by FXTAS, you'll still call the East Ann Arbor Health and Geriatrics Center at 734-647-5670.
Ask for an appointment with Dr. Peter Todd in the Ataxia Clinic.
Rush University Fragile X Syndrome Clinic
rush.edu/kids/treatments/fragile-x-syndrome-clinic
Cincinnati Fragile X Research and Treatment Center
cincinnatichildrens.org/service/p/psychiatry/programs/outpatient/fragile-X