Welcome to the Fragile X Association of Michigan
The Best Club You Never Wanted to Join
Uniting the Fragile X community in Michigan to enrich lives, promote awareness, and advance research.
Enrich lives through educational and emotional support.
Promote public and professional awareness.
Advance research toward improved treatments and a cure for Fragile X and its associated disorders.
The Fragile X Association of Michigan (FXAM)
Fragile X syndrome (FXS) is a genetic condition that causes varying degrees of mental impairment ranging from mild learning disabilities to cognitive impairment. FXS is the most common inherited form of cognitive impairment known and a leading known cause of autism. FXS is caused by one gene that interferes with the formation of a special protein normally found in the brain. As many as one in 151 women and one in 468 men are carriers of this gene.
Who we are — check out our video HEREUpcoming Events
The 20th NFXF International Fragile X Conference
World Fragile X Day
FXAM Family Picnic
Our next support meeting is October 3, 2026.
Go to our Support Page for more informationFragile X Clinic Resources
Appointments for evaluation/treatment of Fragile X Syndrome in the University of Michigan Fragile X Clinic are available. Schedule by requesting a referral from your child's primary care physician.For more information call 734-764-0579 — ask to speak with Jessica. For FXTAS appointments, call the East Ann Arbor Health and Geriatrics Center at 734-647-5670 and ask for Dr. Peter Todd in the Ataxia Clinic.
Connecting Michigan families with expert Fragile X care.
FXAM works to ensure every family in Michigan has access to specialized evaluation, treatment, and ongoing support for Fragile X syndrome and associated disorders.
The Fragile X Association of Michigan is a National Fragile X Foundation (NFXF) Community Partner. The NFXF website is loaded with all the medical and technical information you need. FXAM provides scholarships to the NFXF International Conference — eligibility requirements can be found HERE.