Advocacy

FXAM plays an active role in national policy through the advocacy efforts of the National Fragile X Foundation — and you can too.

"Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever does."

Margaret Mead

Be an Advocate

The Fragile X Association of Michigan continues to play an active role in national policy through the Advocacy Day efforts of the National Fragile X Foundation. You too can be an advocate — without even going to Washington. Here's how:

Sign Up for Advocacy Updates

Go to the NFXF Advocacy Page and register to receive periodic Advocacy Updates, which include a quick link to send personalized emails when your advocacy is needed.

NFXF Advocacy Page

Contact Your Member of Congress

Contact your member of congress to support Fragile X initiatives.

congress.gov

Phone the Capitol Switchboard

Call (202) 224-3121 to connect directly to your member of congress and make your voice heard.

(202) 224-3121

Join the Fragile X Advocates Facebook Group

Stay involved and up-to-date by joining the national Fragile X Advocates community on Facebook.

Fragile X Advocates on Facebook
US Capitol building, Washington D.C.

National Event

Advocacy Day 2026

Join Fragile X families and advocates from across the country in Washington, D.C. to meet with members of Congress and make the case for Fragile X research and support funding.

Learn more and RegisterDownload: Giving FX a Voice (PDF)

Dates

February 23–24

Location

Washington, D.C.