Support
You are not alone. FXAM connects Michigan families affected by Fragile X with community, resources, and one another.
Next Support Meeting
October 3, 2026
Join us for our next FXAM support group meeting. These gatherings bring together families, caregivers, and individuals affected by Fragile X syndrome in a warm, welcoming environment.
For location details and more information, please contact us.
About Our Support Group
The Fragile X Association of Michigan offers peer support meetings for families and caregivers navigating life with Fragile X syndrome. Our meetings are a safe space to share experiences, ask questions, and find comfort in community. Whether you are newly diagnosed or have been on this journey for years, you are welcome here.
Peer Connection
Meet other Michigan families who truly understand the Fragile X journey — share stories, strategies, and encouragement.
Expert Guidance
Access information from medical professionals, educators, and advocates who specialize in Fragile X syndrome and related conditions.
Emotional Support
Find comfort and strength in a compassionate community that offers both practical advice and heartfelt understanding.
Understanding Fragile X Syndrome
Fragile X syndrome (FXS) is a genetic condition that causes varying degrees of mental impairment ranging from mild learning disabilities to cognitive impairment. FXS is the most common inherited form of cognitive impairment known and a leading known cause of autism. FXS is caused by one gene that interferes with the formation of a special protein normally found in the brain. As many as one in 151 women and one in 468 men are carriers of this gene, and it affects one in 3,600 to 4,000 boys and one in 4,000 to 6,000 girls.
Some older adults with premutations (carriers) may develop a neurological condition called Fragile X-associated tremor/ataxia syndrome (FXTAS). Often misdiagnosed as a "Parkinson's-like" condition, individuals may also have symptoms of ataxia, neuropathy and dementia. Fragile X-associated primary ovarian insufficiency (FXPOI), commonly causes early menopause, is a condition that affects 20–25% of the female FXS carrier population.
Common characteristics of Fragile X Syndrome
Not all are always present
- Mild learning problems to severe cognitive impairment
- Behavior issues such as ADHD and ADD
- Autistic-like features such as poor social skills, poor eye contact, hand-biting and hand-flapping
- Shyness and social anxiety
- Prominent ears, prominent forehead and long narrow face
- Sensitivity to sounds or lights
- Difficulty adjusting to change
Join our Facebook group to connect with the FXAM community between meetings — share updates, ask questions, and stay informed.
Fragile X Association of Michigan on Facebook